Sunday, February 12, 2017

Hello Friends!!

  I know it's been ages since I have done a blog post -- so I thought I would pop in to say hello and let you all know how I am doing.

   The Cancer Battle continues and I'm still trying VERY hard to remain positive and determined to hope for a CURE!   Due to continued side effects caused from "Opdivo" the Immunotherpay drug I have been on since December of 2015 - I have been placed on a treatment break for the past few months and have been closely monitored by CT Scans and monthly check ups at my Oncology Unit.   Thankfully, the Lung Tumor has remained Stable, which is good news and we do hope that this long break will allow the Pneumonitis to finally clear for good and also give my body a much needed break from non-stop treatments I been having for almost two years now.  It's hard to believe but, it will be two years on March 27th.   The day I learned that I had a brain tumor -- and subsequently learned that the brain tumor, was actually a metastases, from my primary cancer which was then diagnosed as Stage IV Lung Cancer.    If you know anything about cancer, I'm sure you know that Stage IV is the worst stage and is also often referred to as terminal cancer, a term I totally do not like to use   To day, there is currently not a cure for Stage IV Lung Cancer, but thankfully it is treatable and as long as the treatments work, you can bet I'm going to fight.

   It's been and up and down battle!!!   -- I did very well with the Stereotactic Radiation treatment that was first done for the Brain Tumor.  It worked perfectly for me and there is no longer any sign of that tumor.  YAY!  Hopefully, it will never return, but I will continue to have Brian Scans or MRI's forever to be sure there is not any recurrence.   Lung Cancer tends to spread to the Brain or the Bones most often.   Ironically, it was the symptoms from the Brain Tumor that actually lead to the Urgent CT Scan I had back on that Friday in March.  The day I found out I had a Brain tumor --- Some of the worst words you'll ever hear spoken.    Sometimes I think back and it seem surreal.   I can still remember how scared I was and how much it changed my life in a matter of two days.   I thought I had "vertigo", and it all came only two days prior, but by Friday morning, I has started to have difficulty with my speech and use of my right arm -- I felt a little dizzy too, but had no other signs of any illness, and never ever expected to then learn that my main tumor was actually in my Lung.   To this date, I have never had any signs of Lung Cancer, no cough, not chest discomfort, no shortness or breath -- nothing!   It's almost hard to believe ?   Ironically, I had been hospitalized exactly one month prior for hip surgery --- and although I had a Chest Xray done for Pre-Ops,  and ultimately four more during that hospital stay, no one ever saw the Lung Tumor?   They told me, that I had Pneumonia a fluky Post Op side effect --- Yet even then I never had a cough or any pneumonia symptoms?  Clearly, something had to have been missed?     I guess I'll never understand how you can be totally "fine" one month and a month later learn that you have late stage Cancer -- WOW!! 

   Did you know that Lung Cancer is the leading Cancer Killer, I didn't, not until I had it.  I always thought that I would be a much higher risk to develop Breast Cancer, especially in my family -- My Mom is two time Survivor and her sister died of Breast Cancer when she was in her 40's.   I was so good about having my Mammograms.  Go Figure!   And although I had once been a smoker, I have been smoke free for over 10 years and had several clean and clear chest xrays.   My risk "being" a former smoker does make my risk somewhat higher, but each you are are smoke free, you risk becomes less and less.   I also have Adenocarcinoma, which is the type of Lung Cancer found most often in Non-Smokers.   We'll never truly know if smoking was a factor in my cancer or not -- but that doesn't matter now and goodness know no one deserves Lung Cancer, but sadly because of the smoking stigma, there are actually people who look at those who smoked, as if they deserve this and did it to themselves.   I've seen that happen in some Support Group and it's upsetting.  No one deserves cancer and many people who smoke, never do get cancer, it's truly a matter of back luck and genes that mutate and can happen anyone.    We need to let everyone one that Lung Cancer strikes ALL !  It is BY far the leading Cancer death among man and women -- 1 in every 4 cancer deaths are from Lung Cancer.  More people die from Lung Cancer than from Breast, Color and Prostate combined and many have never smoked.   If YOU have lungs and breath, you can get Lung Cancer.   And it's not only older patients, it's now affecting many young healthly (non smokers) even starting in the 20's and 30's.  It's getting worse, instead of better and that's so scary.   The median age for Lung Cancer once was 70 -- now it's closer to 40-50?   WOW!

   Moving on from my "Public Service Announcement" -- 
      I know I am extremely lucky to be doing this well, with such a horrible diagnosis.  I am one of the very fortunate Lung Cancer patient's who has had very good results with Immunotherpay and I'm so grateful that I had a super Oncolgist, who persuaded me to try this drug, just one month after it had received FDA Approval to treat Non Small Cell Lung Cancer.  At first, I declined it - I was afraid of all the potential side effects and it really scared me.   I knew if I tried this I would be an "extension" of the clinical trial, but the more I thought about it, I decide to give it a chance and boy am I glad I did, I seriously doubt I would have survived this long, had I not made that choice.   I had already been on Chemo and had Radiation and although that worked for a short time, by October of 2015, my tumor was back, and more aggressive than when I first started?    My tumor grew to over 4 cm in a very short time and was no longer responding to Chemo.  Now, it's only 14 mm which is tiny and has remained that size for almost six months now.   I'm blessed -- !!   There is not doubt in my mind that this drug saved my life.   I HOPE every day that I will be able to resume the same treatment, but at this point, we just do not know if it will be safe.  I has caused me to develop Pneumonitis three times now and each time it's been worse -- that itself can quickly become very serious (even fatal) and it's one of those well known side effects of Immunotherpay.   I'm very much in a "Limbo" status right now -- we did not know what is next for me and that will all depend on my next scans in late March.  If I have any progression, I will need to start treatment again, but with what?   These are the unknowns and the thoughts that keep me awake at night -- it's really so hard to ever keep cancer off your mind, when you are fighting it.  
    For now I'm try very hard to shift my focus on to HAPPY things.   My sweet little Grand-daughter is now due any day and I could not be happier.    Alex and Acacia also bought a house and moved into their new home over the Thanksgiving Weekend.    The house they bought is lovely, and was totally renovated -- everything is new and they did not have to do one thing when they moved it.  It's perfect!   A Brand New Kitchen, lovely hardwood floors, three bedrooms, including a lovely Master with a Master bath.  I LOVE it and could easily MOVE right in and be very happy there -- !  I am so happy for them and for their little girl.   They have now chosen a name for the baby and she will be "Harper Leigh".    Her nursery is now all done and is so sweet, I love it and love the colors -- Gray, White and Aqua.   She is going to be one very loved and adored baby and we all anxiously awaiting for her arrival.  Here is a picture of one corner or her room.   

     I am also going to be heading out to San Diego to visit Brian (my oldest son), shortly after Harper arrives (sure hope she is not too late), as I am flying out on March 7th.   I'm super excited to see Brian, it's hard to believe, but it's been a year since I was last there.  I went out for three weeks last February to escape winter and had a wonderful trip.   Funny thing is that the whole time I was gone last year, the weather here at home was fine -- it was cold and there was one day it went down to zero, but we didn't' have any snow the entire time I was away.  This year, up until this month, we've had a really easy and fairly mild winter -- perfect for me.   But, all of sudden, we are now having snow -- UGH!   We've already had over a foot this week and are now under another Blizzard Warning -- starting later today -- I swear sometimes I have the worse luck in life.  I also do not want Little Harper to be born in the middle of a Blizzard and have the worry about the kids traveling to the hospital for her birth -- not to mention that I would not be able to drive to meet her in a Blizzard either?   SO far, there is not sign she's planning to come yet -- Acacia had a non-stress test on Friday and she's fine and well, and clearly perfectly content to keep up waiting.  Funny thing is that we all thought for sure she would be born early and Acacia has been "low" for some time?   Her actual due date is next Saturday the 18th, but they would love for her to arrive on the 16th, as they both were born on the 16th (April and November) and also were married on the 16th -- a lucky nice date for them both.  Hopefully, the next post from me will be to share her first pictures!    WOOHOO!  

    So that's it for me -- as I said, I hope she arrives soon and hope Acacia has an easy labor, they are now thinking she's going to be a big baby and longer we go, she'll only get bigger.   I just HOPE she's not too late --- I scheduled my flights to be three weeks "after" her due date, thinking that would give me time to meet her and then be able to bring lots of pictures to share with "Uncle Brian".  We know they won't let her go beyond two weeks late, but still I never imaged I might only have a week with her, before I leave.   So for now, I'm hoping for the 16th or even the 14th -- I think a Valentine's Baby would be very sweet!

   Before I go I wanted to once again thank you for all the support and kindness that has been shared with me.  Sadly, I never did return to creating, which I still greatly miss, I'm just too darn wiped out most days to find the energy!    I also still have tons and tons of craft goodies to sell and plan to restock my "Purple Packages" again after my trip.  I'm also now be "selling" everything I can, as we may also put our house on the market in the Spring.   Please stay turned for lots of new sales coming soon and again, thanks to everyone who has shopped with me before -- I greatly value your kindness and all the wonderful response!

  Hugs and Thanks for visiting!!


UPDATE:   February 15, 2017 -- Thanks for all the sweet comments -- you all are so kind and your words truly touch my heart.    


Karen L K said...

Thanks so much for popping in with an update about what is going on with you. I was just thinking of you yesterday & wondering how you were doing. I'm sorry you have to go through all of this. How exciting that you will be going soon to see your new granddaughter! Enjoy! Take care.

Deborah Ehrhardt said...

Hi Lisa,

It was so good to read your post! Having a grandbaby IS the best! All my friends who were grandparents before me were "gaga" over their grands. I didn't completely understand and told myself I needed to "pace" myself because no one is sure they will ever be a grandparent. As it turned out, my daughter and husband had a baby boy and now I understand! Our grandson is 3 years old and is so much fun. My love for him fills up my heart in a place that needed filling. I can't wait until I see him again. Everyone deserves this life experience. So happy for you!

I have purchased several of your purple boxes and still enjoy the goodies I found in them. I will purchase another if I possibly can. Take care of yourself. Sending lots of love!

Deb said...

So glad you are still doing ok on your treatment break! Enjoy that new Grandbaby, and the visit to see your son!! Thanks for the update.

Cat Craig said...

So glad you posted, you have been on my mind lately. We can wave to one another in the air, I am flying to CA to see my Dad the same day. Stay strong Lisa, attitude is a big part of the battle. Hugs and prayers.

Brenda said...

wow its really nice post

Vickie Lee said...

Hi, Lisa. It is wonderful to hear from you! I check your blog often and continue to pray for you. Thank you so much for the update. Here's to your new granddaughter arriving in plenty of time so you can spoil her before you go see your son.I am so excited for you! Please keep us posted as to how you are doing and about your trip and of course your new granddaughter. Praying for a cure with you and for you to gain strength. Many hugs . . .

Betty Keefe said...

so good to hear from you Lisa - can't wait to see pics of that sweet little girl.

A Little About Me

My photo
Northeastern, Massachusetts, United States
Purple is my favorite color and ironically - Purple is the Awareness Ribbon color for Fibromyalgia, a chronic illness I lived with for over 15 years. In, March of 2015, I was diagnosed with Stage IV Lung Cancer which had spread to my brain. I am fighting hard to win this battle and determined to beat it. I have a amazing Oncology Team, along with the LOVE and SUPPORT of all my family and friends! I am a Mom to two grown sons, Alex is now 24 and married to Acacia, my wonderful new "Daughter", and Brian amazingly is 29 and now lives in San Diego. My boys are the greatest loves of my life. Hubby, me and our two "Pups", Skye and Zeva, two adorable Chiweenies we rescued in 2012, all live very happily in a tiny coastal town in Massachusetts. We lost our dear "Scoutie", a Purebred Dachshund, in April of 2015. I still miss him and will forever cherish his memory. I am an avid card-maker and totally love every minute I can spend in my craft room. It's become my passion, a wonderful way to relax and is my form or "therapy".