Saturday, September 10, 2016

....Hi everyone....

   I am very sorry for the the lack of updates.  My main computer crashed a couple of weeks ago and I still have not had the time or energy to research find a new one.   I also do not really want to spend any money on one, at this time.   I am extremely disappointed with Dell, who has refused to stand behind their products.  Long story short, my computer was only a little over two years old and died very fast, basically right after the warranty ran out and the estimate to try to fix it, is just not worth it.  But, I miss it terribly!   I have an iPad and a small HP laptop, but really am a PC gal and miss my large screen and the ability to type on a normal keyboard.

  I re-started my Opdivo treatments in August, and after only two treatments, developed a sudden high fever, belly pain and other issues which sent me to the ER last Friday night, where I spent six hours having a variety of tests and such.  In the end they determined I have Pneumonia, although it was found very early, but is again and issue that developed because of the Opdivo, so I'm now OFF it again and waiting for the new "plan".  Thankfully, my lung tumor which is in my right lung and is stable.   The pneumonia is in the left and is a mild form (not symptoms other than the fever) which only lasted about 24 hours.   And my cancer had not been found anywhere new and also has not grown despite the lack of treatments, which is my Happy News!!   Even so, I am concerned about where we go from here, since it looks like this treatment will not likely be an option for me now?

    Most of my time has been spent sleeping, as I continue to battle relentless fatigue, partly from the Opdivo, partly from the Cancer, some from the Pneumonia and of course, the Fibromyalgia that I have been battling with for several years now.   Life is NOT very fun these days and I have had some really down and depressed days, as you can imagine.

    My oldest son,  who lives in San Diego, also was hospitalized for a sudden onset of what they first thought was "septic arthritis" in his knee and that was very stressful for me, being across the country and not knowing how he was.   Now we know it is a very rare viral type arthritis likely caused by a food borne illness (Salmonella, we think), he had just two weeks before he was here.  He was home for a short visit (which I loved), and had been fine, except tired, but the day he was flying home he woke up with knee pain--we never imagined what would follow.  Needless to say his flight home was NOT good.  He is also moving up to (Northern San Diego County) and starting a brand new job.  The timing of all of this is awful and I so wish I had been able to be there when he was sick. Luckily, he kept in touch all the time and his medical team also keep me updated, but it sure is not easy having a child (no matter what age), in the hospital when you are 3,000+ miles away.   He's out now and slowing improving, but it's hard to know he's in pain and I can't wait for him to be settled into his new place, working and doing well again!

    Right now I'm too wiped out to pack up any new "Purple Packages" but really do need to get back to it soon, so please keep checking.   I still have so much to sell, and hope to feel better soon, to get back to that task.   I wish I could just have a huge in home sale and invite you all here?   It's a huge amount of work to do this, especially when you are not feeling good and then do not have your main computer!!  Ugh!!  Life is definitely throwing challenges my way and making it a bit of a struggle, but I still and trying my best!!    One Day at a Time!!

Hope you are ALL much better and please feel free to email me, IF you want or need any crafty things.  I do plan to add more packages and such, but simply need to find the energy to do it!! Thanks for ALL your past support -- your kindness is deeply appreciated!!

5 comments:

Donna Nuce said...

Hugs to you Lisa! Prayers for your healing and your son's healing! Hope all the resting will help you feel better. Hugs!
Donna

Carol L said...

It's good to hear from you Lisa and know how you're doing. I pray for restful pain-free days for you and hope you kick this cancer to the curb! Sending hugs to you and your son for brighter, healthier days ahead! ((hugs)))

Deb said...

So sorry you are having trouble with your treatment...not to mention other health issues! Hope you can feel better soon! Also your son, how horrible I'm sure it is to not be able to be there with him when he is hurting. I caught a cold this last week...a COLD...in SUMMER! Uggg, could NOT believe it! But then, I usually catch everything that comes around...not good as that means my immune system isn't good, but that's not surprising with other health issues I've been dealing with. So...it does seem that kinda thing is going around, even if it is still summer.

Anyway, hope you get back to doing better soon...and can get a new computer! I love my laptop...although use an external keyboard with it, cause don't think I'd like just using the one on it, but being able to take it with me if I need to (which I don't usually) is nice!

Vickie Lee said...

Hi, Lisa,

It is so wonderful to read a post from you. I am always thinking of you and you are in my prayers. Too bad you are not close, I would love to help you!! You keep resting and keep a positive attitude through these very difficult times. Prayers for both you and your son. Warm hugs . . . .

ThePurplePlace said...

Thanks everyone for your kind and caring comments -- this battle is truly a tough one and right now all your encouragement is much needed!!

Hugz,
Lisa

A Little About Me

My photo
Northeastern, Massachusetts, United States
Purple is my favorite color and ironically - Purple is the Awareness Ribbon color for Fibromyalgia, a chronic illness I lived with for over 18 years. In, March of 2015, I was diagnosed with Stage IV Lung Cancer which had spread to my brain. I am fighting hard to win this battle and determined to beat it. I have a amazing Oncology Team, along with the LOVE and SUPPORT of all my family and friends! I am a Mom to two grown sons, Alex is now 25 and married to Acacia, my wonderful new "Daughter" and the parents to my precious Grand-Daughter Harper, and Brian amazingly is 30 and now lives in San Diego. My boys are the greatest loves of my life. Hubby, me and our two "Pups", Skye and Zeva, two adorable Chiweenies we rescued in 2012, all live very happily in a tiny coastal town in Massachusetts. We lost our dear "Scoutie", a Purebred Dachshund, in April of 2015. I still miss him and will forever cherish his memory. I am an avid card-maker and totally love every minute I can spend in my craft room. It's become my passion, a wonderful way to relax and is my form or "therapy".