Sunday, September 25, 2016
Happy News!!!!
Sunday, September 11, 2016
Remember 911
Saturday, September 10, 2016
....Hi everyone....
I am very sorry for the the lack of updates. My main computer crashed a couple of weeks ago and I still have not had the time or energy to research find a new one. I also do not really want to spend any money on one, at this time. I am extremely disappointed with Dell, who has refused to stand behind their products. Long story short, my computer was only a little over two years old and died very fast, basically right after the warranty ran out and the estimate to try to fix it, is just not worth it. But, I miss it terribly! I have an iPad and a small HP laptop, but really am a PC gal and miss my large screen and the ability to type on a normal keyboard.
I re-started my Opdivo treatments in August, and after only two treatments, developed a sudden high fever, belly pain and other issues which sent me to the ER last Friday night, where I spent six hours having a variety of tests and such. In the end they determined I have Pneumonia, although it was found very early, but is again and issue that developed because of the Opdivo, so I'm now OFF it again and waiting for the new "plan". Thankfully, my lung tumor which is in my right lung and is stable. The pneumonia is in the left and is a mild form (not symptoms other than the fever) which only lasted about 24 hours. And my cancer had not been found anywhere new and also has not grown despite the lack of treatments, which is my Happy News!! Even so, I am concerned about where we go from here, since it looks like this treatment will not likely be an option for me now?
Most of my time has been spent sleeping, as I continue to battle relentless fatigue, partly from the Opdivo, partly from the Cancer, some from the Pneumonia and of course, the Fibromyalgia that I have been battling with for several years now. Life is NOT very fun these days and I have had some really down and depressed days, as you can imagine.
My oldest son, who lives in San Diego, also was hospitalized for a sudden onset of what they first thought was "septic arthritis" in his knee and that was very stressful for me, being across the country and not knowing how he was. Now we know it is a very rare viral type arthritis likely caused by a food borne illness (Salmonella, we think), he had just two weeks before he was here. He was home for a short visit (which I loved), and had been fine, except tired, but the day he was flying home he woke up with knee pain--we never imagined what would follow. Needless to say his flight home was NOT good. He is also moving up to (Northern San Diego County) and starting a brand new job. The timing of all of this is awful and I so wish I had been able to be there when he was sick. Luckily, he kept in touch all the time and his medical team also keep me updated, but it sure is not easy having a child (no matter what age), in the hospital when you are 3,000+ miles away. He's out now and slowing improving, but it's hard to know he's in pain and I can't wait for him to be settled into his new place, working and doing well again!
Right now I'm too wiped out to pack up any new "Purple Packages" but really do need to get back to it soon, so please keep checking. I still have so much to sell, and hope to feel better soon, to get back to that task. I wish I could just have a huge in home sale and invite you all here? It's a huge amount of work to do this, especially when you are not feeling good and then do not have your main computer!! Ugh!! Life is definitely throwing challenges my way and making it a bit of a struggle, but I still and trying my best!! One Day at a Time!!
Hope you are ALL much better and please feel free to email me, IF you want or need any crafty things. I do plan to add more packages and such, but simply need to find the energy to do it!! Thanks for ALL your past support -- your kindness is deeply appreciated!!
Most of my time has been spent sleeping, as I continue to battle relentless fatigue, partly from the Opdivo, partly from the Cancer, some from the Pneumonia and of course, the Fibromyalgia that I have been battling with for several years now. Life is NOT very fun these days and I have had some really down and depressed days, as you can imagine.
My oldest son, who lives in San Diego, also was hospitalized for a sudden onset of what they first thought was "septic arthritis" in his knee and that was very stressful for me, being across the country and not knowing how he was. Now we know it is a very rare viral type arthritis likely caused by a food borne illness (Salmonella, we think), he had just two weeks before he was here. He was home for a short visit (which I loved), and had been fine, except tired, but the day he was flying home he woke up with knee pain--we never imagined what would follow. Needless to say his flight home was NOT good. He is also moving up to (Northern San Diego County) and starting a brand new job. The timing of all of this is awful and I so wish I had been able to be there when he was sick. Luckily, he kept in touch all the time and his medical team also keep me updated, but it sure is not easy having a child (no matter what age), in the hospital when you are 3,000+ miles away. He's out now and slowing improving, but it's hard to know he's in pain and I can't wait for him to be settled into his new place, working and doing well again!
Right now I'm too wiped out to pack up any new "Purple Packages" but really do need to get back to it soon, so please keep checking. I still have so much to sell, and hope to feel better soon, to get back to that task. I wish I could just have a huge in home sale and invite you all here? It's a huge amount of work to do this, especially when you are not feeling good and then do not have your main computer!! Ugh!! Life is definitely throwing challenges my way and making it a bit of a struggle, but I still and trying my best!! One Day at a Time!!
Hope you are ALL much better and please feel free to email me, IF you want or need any crafty things. I do plan to add more packages and such, but simply need to find the energy to do it!! Thanks for ALL your past support -- your kindness is deeply appreciated!!
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A Little About Me
- ThePurplePlace
- Northeastern, Massachusetts, United States
- Purple is my favorite color and ironically - Purple is the Awareness Ribbon color for Fibromyalgia, a chronic illness I lived with for over 18 years. In, March of 2015, I was diagnosed with Stage IV Lung Cancer which had spread to my brain. I am fighting hard to win this battle and determined to beat it. I have a amazing Oncology Team, along with the LOVE and SUPPORT of all my family and friends! I am a Mom to two grown sons, Alex is now 25 and married to Acacia, my wonderful new "Daughter" and the parents to my precious Grand-Daughter Harper, and Brian amazingly is 30 and now lives in San Diego. My boys are the greatest loves of my life. Hubby, me and our two "Pups", Skye and Zeva, two adorable Chiweenies we rescued in 2012, all live very happily in a tiny coastal town in Massachusetts. We lost our dear "Scoutie", a Purebred Dachshund, in April of 2015. I still miss him and will forever cherish his memory. I am an avid card-maker and totally love every minute I can spend in my craft room. It's become my passion, a wonderful way to relax and is my form or "therapy".


